I've started this site as a means to keep family, friends and co-workers updated on the status of a brain tumor that I was diagnosed with on August 23, 2006. It will certainly be a work in progress, but I hope that it will provide people with relevant information and feedback. Note that I don't claim to have the expertise of a Doctor, this site just reflects my opinions and personal experiences.
posted by Mark at 4/26/2010 10:43:00 AM
This blog still represents my medical updates, but it has assumed another function - to help other patients with the same or similar conditions, or anything to be determined to be cancerous. Treatments for different types of cancer will vary a LOT, but some items MAY be common. I do occasionally inject (<-too many medical treatments) some posts about my other activities, for reader entertainment (hopefully). I may be late, or not report something, but rest-assured that I probably have a photo of it! :) On delays - seemingly random acts. I strongly desire to keep this site up to date, but other events may take priority and create delays. I wish I could clone myself ;), but the technology is not here yet. A very quick summary...
4 Comments:
Mark,
Your blog is great! I'm a recently diagnosed GBM 4 patient, my tumor is in my right frontal lobe. I had surgery, and am halfway through 33 radiation treatments along with Temodor.
Your slideshow of radiation is great. I have not been able to see how it works since I'm always on the table in the mask, so this is pretty cool.
It's also fabulous to see someone who is several years out post-diagnosis, I look for those survivor stories.
You are doing a great service to the brain tumor community by keeping this blog. I know it must be a lot of work, but for people like me, it shows that there are people who manage to get much more time than the "median survival rate."
I pray that you will continue to have good results from your treatments.
Valerie Johnson
Memphis, TN
....isn't that the greatest comment yet!!!!! (above) Mark, it is wonderful that all your hard work in postings your ordeal is soooooo appreciated by others out there. If I'm not mistaken, this is one of several posts of patients or family of patients who are dealing with similar or the same diagnosis as yours.... isn't it super that something is so good out of something not so good!
Patiently waiting to your updated posts...know you're compiling all your information and will post when you're up to it.
Love you guys....take care and try to come see us when you are up to it.
Mary & Bill Gregory and the clan
Valerie,
Thanks for your comments! I'm glad I could provide some help. Yes, my first radiation treatment plan was face-down. There was a beach scene on the ceiling, but I didn't realize it for weeks... I took a movie of my last radiation treatment, but I have not posted yet. Check back when you can. I hope the best for you!
-Mark
Mary,
Thanks! Yes, I greatly appreciate any feedback from patients or their families (or anyone else, for that matter).
I do not like to delay posts, but it will undoubtedly happen... I have to play catch-up, or skip certain posts, :(
-Mark
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